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This
page will serve as a resource directory for Gildas Club family and friends.
Bone
Marrow Transplants & Donors
Brain Tumors
Breast Cancer
Children & Young Adults
Colon Cancer
General Cancer Information & Support
GIST (Gastrointestinal Stromal Tumor)
Gynecological Cancer
Hospice
Kidney Cancer
Liver Cancer
Lung Cancer
Mesothelioma
Myeloma, Leukemia & Lymphoma
Oral, Head & Neck Cancers
Other
Ovarian Cancer
Pancreatic Cancer
Patient Advocacy
Prostate Cancer
Skin Cancer
Testicular
Thyroid
BONE
MARROW TRANSPLANTS & DONORS
National
Bone Marrow Transplant Link
Operates a 24–hour‚ toll–free number and provides peer support to bone
marrow transplant (BMT) patients and their families. It serves as an information
center for prospective BMT patients as well as a resource for health
professionals.
(800) LINK-BMT (800-546-5268)
nbmtlink@aol.com
www.nbmtlink.org
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National
Marrow Donor Program®(NMDP)
Funded by the Federal Government to improve the effectiveness of the search for
bone marrow donors. It keeps a registry of potential bone marrow donors and
provides free information on bone marrow transplantation. Help available in
English, Spanish, Chinese, Japanese, Vietnamese, and Korean.
(800) MARROW–2 (800-627-7692)
www.marrow.org
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Blood
and Marrow Transplant Information Network
Patient-friendly handbooks and a quarterly newsletter about transplantation.
Links patients with survivors who can provide emotional support. Maintains an
online Directory of Transplant Centers in the US and Canada, an online Directory
of Drugs used during transplant, and an online Reource Directory. Offers
attorney referrals for patients who have insurace disputes. Comprehensive
website.
(888) 597-7674
help@bmtinfonet.org
www.bmtinfonet.org
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BRAIN
TUMORS
National
Brain Tumor Foundation (NBTF)
Provides patients and their families with information on how to cope with their
brain tumors. Spanish language help available.
(800) 934-CURE (800-934-2873)
nbtf@braintumor.org
www.braintumor.org
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American
Brain Tumor Association
Offers free publications, educational programs, social service consultations by
telephone, a mentorship program, support group lists, a resource list of
physicians, a pen pal program and funds research.
(800) 866-2282
abta@aol.com
www.abta.org
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The
Brain Tumor Society
Provides individualized patient/family information, publishes educational
materials, sponsors professional and patient conferences, and funds research.
(800) 770-8287
info@tbts.org
www.tbts.org
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The
Guardian Brain Foundation
The mission of The Guardian Brain Foundation is to help advance neuroscience
research, provide support services and to improve quality of life for adults and
children diagnosed with injuries and tumors of the brain.
(516) 679-5075
info@guardianbrain.com
www.guardianbrain.com
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BREAST
CANCER
National
Alliance of Breast Cancer Organizations (NABCO)
NABCO provides information about breast cancer and acts as an advocate for the
legislative concerns of breast cancer patients and survivors.
(888)80-NABCO (888-806-2226)
www.nabco.org
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National
Breast Cancer Coalition (NBCC)
A grassroots organization dedicated to ending breast cancer through action and
advocacy. NBCC works to increase federal funding for breast cancer research,
collaborate with the scientific community to implement new models of research;
improve access to high quality health care; and expand the influence of breast
cancer advocates in all aspects of the breast cancer decision-making process.
(800) 622-2838
www.natlbcc.org
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Sisters
Network, Inc.
Seeks to increase local and national attention to the impact that breast cancer
has in the African-American community. All chapters are run by breast cancer
survivors and receive volunteer assistance.
(866)781-1808
sisnet4@aol.com
www.sistersnetworkinc.org
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The
Susan G. Komen Breast Cancer Foundation
A toll-free breast cancer helpline (1-800-I’M AWARE®) is answered by trained
volunteers whose lives have been personally touched by breast cancer. Breast
health and breast cancer materials are available. Also includes information on
Komen Race for the Cure.
(800) IM AWARE (800-462-9273)
www.komen.org
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Y-ME
National Breast Cancer Organization, Inc.
Y–ME serves women with breast cancer and their families through their national
hotline (available 24 hours a day)‚ open-door groups‚ early detection
workshops‚ and support programs. Spanish language help available.
(800) 221-2141 (English); (800) 986-9505 (Spanish)
www.y-me.org
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About
Breast Health
A resource for breast cancer patients or other concerned persons, this excellent
site provides general information, an informative FAQ and a portal for people to
contact physicians and support groups.
502-629-6950
info@AboutBreastHealth.com
www.aboutbreasthealth.com
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Booklet:
"Getting Back on Track: Life After Treatment"
A comprehensive guidebook that uses non-medical terms to help patients cope with
the physical, psychological and practical concerns they may face long after
completion of active treatment.
(416) 340-3303
uhn.info@uhn.on.cam
www.uhn.ca/patient/health_info/references/breastcancer_booklet.asp
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CHILDREN
& YOUNG ADULTS
Candlelighters
Childhood Cancer Foundation (CCCF)
A nonprofit organization that provides information‚ peer support‚ and
advocacy. A financial aid list has organizations to which eligible families may
apply for assistance.
(800) 366-CCCF (800-366-2223)
info@candlelighters.org
www.candlelighters.org
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Kids
Konnected
Provides friendship, education, and support to kids who have a parent with
cancer.
(800) 899-2866
info@kidskonnected.org
www.kidskonnected.org
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Planet
Cancer
Planet Cancer is a community of young adults with cancer. It's a website to
share insights, explore fears, laugh with others who just plain get it. They
don't deny the dark side of illness and death here. But they also firmly believe
that laughter and light can turn up in the strangest places.
(512) 481-9010
www.planetcancer.org
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Ronald
McDonald House
Offers programs to help children including refuge from the hospital, a
“home-away-from-home” and “Family Rooms” within hospitals.
(630) 823-7048
www.rmhc.com
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The
Ulman Cancer Fund for Young Adults
Serves young adults worldwide through website and offers support groups for
young adults affected by cancer, their family and friends.
(888) 393-FUND
info@ulmanfund.org
www.ulmanfund.org
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StarBright
The STARBRIGHT Family Rooom is an online community that provides information and
support to help parents care for their seriously ill child. There is a new
edition each month featuring information from both caregivers and healthcare
professionals. Topics include managing finances, knowing your rights in school
and insurance systems, and communicating with doctors. There are also message
boards where parents can share their experiences and gain support from each
other.
(800) 315-2580
www.starbright.org
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COLON
CANCER
Colon
Cancer Alliance
Deeply committed to peer support – in the form of a “buddies program” the
Alliance makes it possible for patients to talk one-to-one with survivors and
caregivers.
(877) 422-2030
gailrh@mindspring.com
www.ccalliance.org
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National
Colorectal Cancer Research Alliance
Co-founded by Katie Couric and Lily Tartikoff, the NCCRA is dedicated to the
eradication of colon cancer by harnessing the power of celebrity to promote
education, fundraising, research, and early medical screening. The site offers
information on screening tests, a health checklist, a factsheet, and information
on clinical research.
(800) 872-3000
www.nccra.org
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GENERAL
CANCER INFORMATION & SUPPORT
American
Cancer Society (ACS)
A voluntary organization that offers a variety of services to patients and their
families. The ACS also supports research, provides printed materials, and
conducts educational programs. Spanish language help available.
(800) ACS-2345 (800-227-2345)
www.cancer.org
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American
Institute for Cancer Research (AICR)
Provides information about cancer prevention, particularly through diet and
nutrition. They offer a toll-free nutrition hotline, pen pal support network,
and funding of research grants. Spanish language publications available.
(800) 843-8114
aicrweb@aicr.org
www.aicr.org
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American
Society of Clinical Oncology (ASCO) Online
Contains more than 40,000 pages of information, including: cancer resources on
the Internet, finding an oncologist, and up-to-date information about cancer
policy issues.
(703) 299-0150
Asco@asco.org
www.asco.org
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Cancer
Care, Inc.
A national nonprofit agency that offers free support, information, financial
assistance, and practical help to people with cancer and their loved ones.
Services are available in person, over the phone, and through the agency's
website. Spanish language help available.
(800) 813-HOPE (800-813-4673)
info@cancercare.org
www.cancercare.org
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Cancer
Hope Network
The Cancer Hope Network provides individual support to cancer patients and their
families by matching them with trained volunteers who have undergone and
recovered from a similar cancer experience.
877-HOPENET (877-467-3638)
www.cancerhopenetwork.org
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CanSurmount
Canadian organization affiliated with the Canadian Cancer Society. Offers
education and support for patients and family members. Attempts to match
volunteers who have survived cancer with patients who are in the hospital.
Services provided in English and French.
In Canada, call: 1-888-939-3333; In the US call: (800) ACS-2345
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Coalition
of National Cancer Cooperative Groups, Inc.
Provides basic information about cancer clinical trials, a list of available
trials offered by seven cooperative groups, and helpful links to patient
advocate groups.
(877) 520-4457
www.cancertrialshelp.org
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Corporate
Angel Network, Inc. (CAN)
CAN finds free air transportation (on corporate planes) for cancer patients who
need medical treatment. Patients must be ambulatory.
(866) 328-1313
info@corpangelnetwork.org
www.corpangelnetwork.org
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Fertile
Hope
A nonprofit organization dedicated to helping cancer patients with fertility
issues.
1-888-994-4673
www.fertilehope.org
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Lance
Armstrong Foundation
The Foundation focuses its activities in the following areas: survivor resources
and support, survivorship programs, national advocacy initiatives, scientific
and clinical research grants.
(512) 236-8820
www.laf.org
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The
Mautner Project for Lesbians with Cancer
Provides support, education, information and advocacy for health issues relating
to lesbians with cancer and their families. Help also available in Spanish.
(202) 332-5536
mautner@mautnerproject.org
www.mautnerproject.org
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National
Cancer Institute
Provides accurate, up-to-date information on many types of cancer, information
on clinical trials, resources for people dealing with cancer, and information
for researchers and health professionals. Help also available for the deaf and
in Spanish.
(800) 4-CANCER (800-422-6237)
www.cancer.gov
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National
Cancer Survivors Day Foundation (NCSD)
National Cancer Survivors Day is the world’s largest cancer survivor event and
is celebrated on the first Sunday in June of each year in more than 700
communities throughout North America and elsewhere. A free celebration planning
kit is available from the foundation.
(615) 794-3006
ncsd@aol.com
www.ncsdf.org
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National
Coalition for Cancer Survivorship (NCCS)
NCCS is a network of groups and individuals that offer support to cancer
survivors and their loved ones. It provides information and resources on cancer
support‚ advocacy‚ and quality-of-life issues. A section of the NCCS website
and a limited selection of publications are available in Spanish.
(877) 622-7937
www.canceradvocacy.org
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National
Lymphedema Network, Inc
Cancer organization focusing on Lymphodema. The network publishes a quarterly
newsletter, provides referrals, presents a biennial national conference and
offers educational materials for purchase.
(800) 541-3259
www.lymphnet.org
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OncoLink
Affiliated with the University of Pennsylvania Cancer Center. A comprehensive
website that provides information about specific types of cancer, updates on
cancer treatments and news about research advances.
(215) 349-5445
www.oncolink.upenn.edu
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R.
A. Bloch Cancer Foundation, Inc.
The foundation matches newly diagnosed cancer patients with trained‚
home-based volunteers who have been treated for the same type of cancer.
Informational materials and a list of institutions that offer second opinions
also available.
800-433-0464
www.blochcancer.org
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Vital
Options International TeleSupport Cancer Network
An organization that facilitates a weekly syndicated call-in cancer talk show
linking callers with other patients, long-term survivors, family members,
physicians, researchers and therapists. Offers services in English and French.
(800) 477-7666
info@vitaloptions.org
www.vitaloptions.org
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The
Wellness Community
Provides free psychological and emotional support to cancer patients and their
families. They offer support groups on stress reduction and cancer education
workshops‚ nutrition guidance‚ exercise sessions‚ and social events.
(888) 793-WELL (888-793-9355)
help@wellness-community.org
www.thewellnesscommunity.org/
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Cancer.com
Developed by Ortho Biotech Products, Cancer.com is a portal aggregating links to
cancer-related Web sites and online tools. The information is organized by
topic, and there are special sections for caregivers and healthcare
professionals.
www.cancer.com/
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Chemocare.com
Scott Hamilton's website is designed to provide the latest information about
chemotherapy to patients and their families, caregivers and friends.
www.chemocare.com
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Cancervive,
Inc.
For the past 17 yrears, Cancervive has provided counseling, education and
advocacy to cancer patients, family members and health professionals. Our
patient education materials (books, documentary videos and games) are being used
and valued in every major cancer center.
(800) 4-TO-CURE
cancervivr@aol.com
www.cancervive.org
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Cancer
Consultants
Cancer Consultants is dedicated to providing comprehensive prevention and
treatment information, up-to-date news, and clinical trials listings for cancer
patients and their families.
(208)727-6880
ldubose@cancerconsultants.com
www.cancerconsultants.com
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National
Cancer Institute: Clinical Trials at NIH
In depth information on clinical trials
1-888-NCI-1937
ncicssc@mail.nih.gov
http://ccr.cancer.gov/trials/cssc/
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GIST
(GASTROINTESTINAL STROMAL TUMOR)
The
Life Raft Group
The Life Raft Group is a non-profit organization providing support, through
information, education, and innovative research to patients with a rare cancer
called GIST (Gastrointestinal Stromal Tumor). Our outreach efforts touch
patients, and their doctors, throughout the world.
973-837-9092
pbarckett@liferaftgroup.org
http://www.liferaftgroup.org/
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GIST
Support International
On this site you will find people from around the world who are dealing with
GIST, both the experienced and inexperienced, patients and caregivers,
nonprofessionals and professionals. Here you will find support, contacts and
information for managing life with GIST Cancer.
gsi@gistsupport.org
www.gistsupport.org
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GYNECOLOGICAL
CANCER
Gynecologic
Cancer Foundation (GCF)
GCF is designed to increase public awareness of ways to prevent, detect and
treat gynecological caners and supports innovative research.
(800) 444-4441
gcf@sba.com
www.wcn.org/gcf/
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HOSPICE
Hospice
Education Institute
Includes programs such as HospiceLink, which helps patients and their families
find support services in their communities. They offer information about hospice
and palliative care and can refer cancer patients and their families to local
hospice and palliative care programs.
(800) 331-1620
www.hospiceworld.org
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National
Hospice and Palliative Care Organization (NHPCO)
The NHPCO is an association of programs that provide hospice and palliative
care. Help in Spanish is also available.
(800) 658-8898
www.nhpco.org
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KIDNEY
CANCER
Kidney
Cancer Association
Supports research‚ offers printed materials about the diagnosis and treatment
of kidney cancer‚ sponsors support groups‚ and provides physician referral
information.
(800) 850-9132
office@kidneycancerassociation.org
www.kidneycancerassociation.org
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LIVER
CANCER
American
Liver Foundation
Support and referrals for people with liver cancer and liver diseases.
(800) GO-LIVER
info@liverfoundation.org
www.liverfoundation.org
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About
Liver Tumors
A resource for liver patients and concerned persons. This website is an
excellent resource that includes FAQ's, definitions, as well as a portal for
people to contact physicians and support groups.
(502) 629-3380
info@AboutLiverTumors.com
www.aboutlivertumors.com/
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LUNG
CANCER
Alliance
for Lung Cancer Advocacy, Support and Education (ALCASE)
ALCASE offers programs designed to help improved the quality of life of people
with lung cancer and their families. Programs include education about the
disease, psychosocial support, and advocacy about issues that concern lung
cancer survivors.
(800) 298-2436
info@alcase.org
www.alcase.org
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American
Lung Association
Dedicated to preventing lung disease and promoting lung health. Services also
available in Spanish.
(212) 315-8700
info@lungusa.org
www.lungusa.org
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MESOTHELIOMA
Mesothelioma
Information and Resource Group
The Mesothelioma Information and Resource Group [MIRG] is an organization
created to assist patients, family, friends and loved ones in learning about
mesothelioma and other asbestos-related injuries. It is the aim of MIRG to
provide information about the disease, its causes, its treatment and its
personal and legal impact.
1-888-802-6376
info@mirg.org
www.mirg.org/
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Life
with Mesothelioma
Learn more about this disease at this informative site.
1-800-780-2686
www.lifewithmesothelioma.com
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MYELOMA,
LEUKEMIA & LYMPHOMA
International
Myeloma Foundation (IMF)
Supports education, treatment, and research for multiple myeloma. They provide a
toll-free hotline, seminars, and educational materials for patients and their
families. Assistance is provided in many languages.
(800) 452-CURE (800-452-2873)
TheIMF@myeloma.org
www.myeloma.org
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The
Leukemia and Lymphoma Society
The goal of the society is to find cures for leukemia, lymphoma, Hodgkin's
disease, and multiple myeloma and to improve the quality of life of patients and
their families. The society provides patient financial aid for specified
treatment expenses and transportation, family support groups, First Connection
(a professionally supervised peer support program), referrals and scholl re-rentry
materials. Help is also available in Spanish, French, Portuguese, and Japanese.
(800) 955-4572
www.leukemia-lymphoma.org
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Lymphoma
Research Foundation (LRF)
LRFA funds research and provides educational information on lymphoma. They offer
a helpline for general information on lymphoma, as well as referrals to othe
resources, oncologists, clinical trials and support groups. A buddy program is
available to match newly diagnosed patients with other lymphoma patients who
have coped with the disease.
(800) 500-9976
www.lymphoma.org
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The
Multiple Myeloma Research Foundation (MMRF)
Supports research grants and professional and patient symposia on multiple
myeloma and related blood cancers. MMRF publishes a quarterly newsletter, and
provides referrals and information packets free of charge to patients and family
members.
(203) 972-1250
themmrf@themmrf.org
www.multiplemyeloma.org
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Lymphatic
Research Foundation
The Lymphatic Research Foundation's mission is to advance research of the
lymphatic system and to find the cause of and cure for lymphatic diseases,
lymphedema, and related disorders.
(516) 625-9675
lrf@lymphaticresearch.org
www.lymphaticresearch.org
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ORAL,
HEAD & NECK CANCERS
International
Association of Laryngectomees (IAL)
An association of over 230 laryngectomee clubs. Clubs provide pre- and
post-operation visits to larryngee cancer patients and continuing support
education for laryngectomees and families.
(866) IAL-FORU (866-425-3678)
IAL@larynxlink.com
www.larynxlink.com
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Support
for People with Oral and Head and Neck Cancers, Inc. (SPOHNC)
Offers a program of support and information addressing the emotional,
psychological and humanistic needs of oral and head and neck cancer patients.
(800) 377-0928
info@spohnc.org
www.spohnc.org
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Mouth
Cancer Foundation
A not-for-profit Internet portal that aims to help patients and health
professionals find free information on mouth, head & neck cancers easily. It
provides direct links to the relevant sections of existing cancer websites and
includes patient stories as well as an active message board, which acts as an an
easily accessible online support group The website includes first hand patient
accounts of their experiences, has sections on Treatment, Complications,
Cheerful Help, Spiritual Help, HPV Risks, Tobacco Risks, etc.
0845 46 47
info@mouthcancerfoundation.org
www.mouthcancerfoundation.org
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OTHER
Sarcoma
Alliance
Strives to improve the lives of Sarcoma patients through guidance, education
support.
415-381-7236
info@sarcomaalliance,org
www.sarcomaalliance.org
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CarePages
CarePages are patient websites that deliver emotional support to patients and
families by making it easy for them to stay in touch during a hospital stay or
any time when care giving is needed.
773.348.0720
support@carepages.com
www.carepages.com
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Shop
Well With You
Shop Well with You is a 501(c)3 not-for-profit organization that helps women
with a history of cancer improve their quality of life by using clothing as a
creative means towards wellness.
(800) 799-6790
info@shopwellwithyou.org
www.shopwellwithyou.org
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OVARIAN
CANCER
CONVERSATIONS:
The International Ovarian Cancer Connection
Publisher of CONVERSATIONS! The International Newsletter for Those Fighting
Ovarian Cancer, a free monthly newsletter providing hope, humor, support and
information about treatment options and coping tips. Survivor-to-fighter
matching service available.
(806) 355-2565
www.ovarian-news.org
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National
Ovarian Cancer Coalition (NOCC)
NOCC raises awareness about ovarian cancer and promotes education about the
disease. They also offer support groups, a database of gynecologic oncologists
searchable by state, and educational materials.
(888) OVARIAN (888-682-7426)
www.ovarian.org
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Ovarian
Cancer National Alliance (OCNA)
Works to increase public and professional understanding of ovarian cancer and to
advocate for research. The Alliance distributes materials and sponsors an annual
advocacy conference for survivors and families.
(202) 331-1332
ocna@ovariancancer.org
www.ovariancancer.org
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The
Ovarian Cancer Research Fund (OCRF)
Dedicated to advancing research by underwriting investigations to find
techinques for early detection and to aid in the development of new therapists.
Raises awareness through educational outreach programs, awareness projects,
including videos and resource materials.
(800) 873-9569
info@ocrf.org
www.ocrf.org
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PANCREATIC
CANCER
Pancreatic
Cancer Action Network (PanCAN)
PanCAN, a national nonprofit advocacy organization, works to focus national
attention on the need to find a cure for pancreatic cancer by providing
advocacy, awareness and education to patients and professionals.
(877) 2-PANCAN (877-272-6226)
info@pancan.org
www.pancan.org
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The
Lustgarten Foundation for Pancreatic Cancer
516-803-2308
lsasso@cablevision.com
www.lustgartenfoundation.org
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PATIENT
ADVOCACY
Patient
Advocate Foundation (PAF)
The PAF provides education‚ legal counseling‚ and referrals to cancer
patients and survivors concerning managed care‚ insurance‚ financial
issues‚ job discrimination‚ and debt crisis matters.
(800) 532-5274
help@patientadvocate.org
www.patientadvocate.org
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PROSTATE
CANCER
Men's
Cancer Resource Group
A support network that runs a 24-hour information line serving prostate cancer
survivors and concerned professionals.
(800) 227-2345
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National
Prostate Cancer Coalition
A grassroots advocacy organization seeking to increase prostate cancer
awareness, enhance outreach and advocate for research funs and better detection
strategies.
(202) 463-9455
info@pcacoalition.org
www.4npcc.org
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US
TOO! International, Inc.
A prostate cancer support group organization. Goals of US TOO! are to educate
men newly diagnosed with prostate cancer, offer support groups, and provide the
latest information about treatment for this disease.
(800) 80-US TOO (800-808-7866)
dorothy@ustoo.com
www.ustoo.org
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SKIN
CANCER
The
Skin Cancer Foundation
Works to increase public awareness of the importance of taking protective
measures against the damaging rays of the sun and teach people how to recognize
early signs of skin cancer. They conduct public and medical education programs
to help reduce skin cancer.
(800) SKIN-490 (800-754-6490)
info@skincancer.org
www.skincancer.org
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About
Melanoma
A resource for melanoma patients and other concerned persons, this site is a
definitive resource, providing in-depth definitions, an extensive FAQ and a
portal through which to contact physicians and experts.
502-629-3380
info@AboutMelanoma.com
www.aboutmelanoma.com
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Melanoma
International Foundation
The Melanoma International Foundation was established by people genuinely
dedicated to battling melanoma on all fronts. Each board member has experienced
melanoma firsthand: either from being a survivor or losing a loved one to the
disease. The foundation is on the cutting edge of creating and supporting the
most effective programs for the prevention, early detection, and treatment of
melanoma.
866-463-6663 or 610-942-3432
info@melanomaintl.org
www.melanomaintl.org
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TESTICULAR
The
Testicular Cancer Resource Center
A website devoted to raising public awareness and education patients about
diagnosis and treatment options. Features self-exam instructions, dictionary,
e-mail support and questions to ask your doctor.
dougbank@alum.mit.edu
www.acor.org/diseases/tc
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THYROID
ThyCa:
Thyroid Cancer Survivors Association, Inc.
A network of services that link thyroid cancer survivors and health care
professionals around the world, the website is maintained by thyroid cancer
survivors.
(877) 588-7904
thyca@thyca.org
www.thyca.org
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